Tuesday, July 28, 2009

Life Questions---

To tell the Truth... Here's a question.
Have you ever done anything out of Haste only to totally regret it somewhere down the road?
I have and honestly I can currently name at least 2 things if not more.
One of them was my Ob/gyn. I had no other choice than to call the first practice I saw off the hospital's website.
I was about 10 weeks pregnant with Daniel when we learned that the Ob/gyn's we had been going to for years no longer delivered where I was wanting to return to deliver this new one. I was shocked... and quite frankly just irritated. I had a dream that told me I was going to be looking for a new doc or "midwife" as the Lord had so kindly put it as HE is the ONLY Great physician.
I knew this guy was not right for me. He was very short with me and didn't give me the time of day. Not particularly what I look for in someone who is looking after me and the health of my unborn baby. He was upset about what we were demanding he do as part of the recommendations our perinatologist gave.
Hey it's not my problem if you like it or not buddy, but you need to know I was not going to sit idly by and wait to go back through the NICU and watch another of my babies nearly not make it. I was going to fight for everything I could.
I spent nearly rest of the pregnancy fighting and after a certain point I got sick of that so I called my perinatologist and told him what was going on and looking back on that now...He was instrumental in saving our sanity.
Did I like some of the docs in the practice. OH Yes, some were downright awesome. But the group as a whole SUCKED when it came to dealing with anything other than safe no risk pregnancies. Their office staff stunk although there were exceptions I can point out.

No, I am NOT pregnant. I have been having some ovarian cysts that have been creating issues for me. Dealing with this should be easy, right... WRONG.
I spend weeks in agony. I also spent weeks on the phone trying to get an appointment to be seen and address this issue. My problem: every time I made an appointment and they saw my name come up on their schedule...I would promptly get a call and be told he wasn't going to see me. ARE you KIDDING me? Who does this.
I was told they couldn't see me without first having an ultrasound. An ultrasound only they could order. The only thing was they only offered it AFTER about 20 minutes of emotional battering, and by that time I had enough and hung up. I had Andrew call them back and he managed to get me an appointment with an ultrasound.

Knowing their history of how well or not well we have been treated there... I get to the point I cannot take it any more the week end before. We trip on down to the Urgent Care in Fort Mill. See a really fantastic doc and tell him my thing. He finds there is blood in my pee and the only thing is that I don't have a urinary tract infection or a kidney infection. I tell him this started in the middle of the cycle. a funny thing to note was that cycle I bled a small amount the entire month probably because of the month before.
He gives me some low level non narcotic stuff. It worked kind of. He put a note in that I may be in the market for a new OB/GYN... We went on our way.

I hate Doctors and drugs
If you really know me... I really don't like going to the doctors that much. In general I don't even like taking as much as a tylenol. I believe in taking care of myself as a part of being a mom to two healthy active little boys.
My Boys HAVE been to the pediatrician, the eye doctor and the dentist. I make sure that they have the best chance given Jonathan's history.
Andrew gets really upset at me for not speaking up when I am in pain or need something. Case in point right after my c-section with Daniel I was in the hospital recovering and I decided I needed to go to sleep. I had to use the potty and after could not move I was in so much pain. I spent the next two hours screaming in pain and eventually crawled back to the bed and got into bed. I promptly called for some pain meds but got no answer. Andrew was at home with Jonathan as we didn't have anyone to watch him. I called Andrew and told him and he was pretty ill with me and un-compassionate just in general. I kept calling but got no answer but could hear everyone laughing and talking about the patients as my door was not able to shut and stay closed. I decided to suck it up and just deal. I was bleeding from my c-section incision and the blood thinners they had me on after they discovered it was bleeding were creating me more problems than it was worth.
My doctor rounded at 5 am (which was insane). Didn't talk to me about anything. Just checked the wound and left. He didn't know Daniel had been moved from the Nicu to where I was , only I decided it was a great thing to be able to get some decent rest. Home was waiting ON me and I wasn't looking forward to it too well.
Jonathan was great only he was having his own issues in combination with the change going on in the family. He had been really in a upset place and became destructo-boy when he is tired and needs a nap)

Anyways
With this pain-which rivals the pain I had after my first miscarriage and d&e back in 2005; I decided after not being able to sleep at night that I needed to get this fixed NOW. I told Andrew, He got the kids packed up and put in the car and off we went to the Emergency room. I was taken care of great and had a very decent exchange I have never been able to have with my real doctor about what was going on. Got the Ultrasound done.. My ovaries were nicely healing and had little to no sign of anything as it was 2 weeks after the fact. they quickly ruled out kidney stones when they learned of its coming oh lets say 14 days before a certain monthly occurence.
I went home with some pain pills and took a decent nap. I got up and went to the doctor. I got there and he did Jack for me. He didn't check a nything he just said this is what we're doing and that was nothing by the way. didn't ask me anything so I was ticked at this point.
I am at a point to where I don't know what to do. do I shop some more for another group or do we just to to our fp for stuff like a pap test and a physical once a year and hope for the best.
This is frustrating knowing full well we want to maybe try to have another child but every baby after Joonathan has to be treated as high risk. My babies lungs don't develop that fast in the womb and need extra intervention at the end of the pregnancy and after birth. It's a rare condition, so rare only a handful of people have had this happen to their child. so we need extra tests since they really don't know what caused this to happen.
NO one seems to want to do anything for us that had a MD after their name. We must have gotten the plague or something. We got a lot of "it must have been a fluke" and "it probably won't happen again" and "just try not to worry". We won't do anything extra.
How can anyone not KNOWING our history come to this conclusion? EASY they assume we're normal... now to the PERI who took care of us who we consulted with pre pregnancy... went and pulled our records from our last OB, the NICU everything before he even talked to us. He was happy that we were asking beforehand. He didn't know WHY but he wanted us to know everything that can be done was done.

Later we would find out that our fear was real and not a fluke event as Daniel had the same thing as Jonathan, although we did some things for Daniel like steroids, and amnio's that proved to be life altering because it dramatically shortened our time in the nicu and the severity of our issues. Instead of a 55 day nicu stay and many weeks treading on the ECMO list, we spent 30 hours in the nicu under observation, because they were just as scared as we were about a repeat event.

So lets just say it was God and my perinatologist that helped Daniel and not my OB...(whom I only saw 3 times the entire pg.) hmmm maybe I can call my peri and get a referral... OH maybe. he knows just about everyone in the 3 county area..
hope you enjoy your families and time together with family and friends.

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