Our life...Hills and valleys

Ok, Looking at the last two weeks I probably have been busier than anything.
We have had some breakthroughs that are wonderful and also some setbacks. It is just part of life. There are hills and valleys that we all go through. We all have been sick in our house and although the kids are now well, I am having problems with my sinuses, meanwhile Andrew has bronchitis...
Daniel is a healthy 21 pounds 6 oz. and is 27 inches. TIME to go get a CONVERTIBLE car seat and turn it rear facing.
Yesterday marked 4 years since we lost our baby Samuel. Not a day goes by that I don't think about life since. I am very happy, not about the loss of that baby but that we have Jonathan who is according to everyone around him a very loving child. We will someday far down the road tell Jonathan but for now we will just remember these days.
Jonathan has been talking a whole lot more since we changed speech therapist. It wasn't something we changed but by default since the therapist left we stayed and someone else took him on. I am so happy. His current favorite letter is V. We have a fridge fonics alphabet thingy and he loves it.
We have stopped using signs(sign language) and are encouraging him to talk. It was confusing the folks we were leaving him with at Kidstown and we also want him to make another step forward in his progress.
He likes Handy Manny and a new channel called Sprout... he also loves to dance and especially with mommy :)
Daniel is now in the beginning stages of introducing food and is in a pre stage of crawling... he loves to sit up. We love his smile and laugh and it makes my day hearing his laugh and hearing Jonathan too.
Jonathan has two tests this next week. Saturday he has an occupational therapy eval, and on Tuesday he gets an evaluation from the school district preschool to see if he qualifies. I hope that if he needs it he can get what he needs. We have always having trouble advocating for what he needs and have to constantly prove he needs it.
That's all for me right now.

Trina

Go take a look at this.

I just stumbled upon a blog and for those of you that know me... this was me right after we had Jonathan but it is someone else if you catch what I am saying.

http://www.kellyskornerblog.com/2009/01/sunday-night.html

Take a minute to read this and if you are the praying type please pray. This family needs it and is believing in God's goodness.

I know first hand what it is like to have a baby and totally be shocked like they were. Our hearts go out to them and hope they all heal from this.
For those of you with kiddos please hug your kids extra. And for all of my Nicu grads mommies/dads, and all of our MOD(March of Dimes) friends Thank you for your love and advice. I am forever grateful for the support you all gave me during and after our Journey(s) (there were 2 of them).
That is all for me.
Blessings
Trina

Life as a mom to Jonathan and Daniel

Not sure how I am going to say it but I am so proud of Jonathan. He has come a super long way.
That being said I am a bit annoyed at his occupational therapist. All I will say is we know you aren't really trained in kids but you SHOULD know that it is NEVER acceptable to show your anger or disapproval about my son or any other child in front of that particular kid. Jonathan is very sensitive and as his mom I will not allow anyone to talk about him that way(especially not in front of him).
I really felt like letting her have it verbally, but decided it would do no good as I've made several attempts to get her to tell me what the heck she is doing with him in his therapy with no reply.
Next step will be contacting the administrator or just calling my insurance company. This should be against the law to not communicate what is happening with my child or allowing me to witness therapy through a 2 way mirror.
Now I feel absolutely horrible about how this lady acted and has constantly tried to label him even though we have a doctor and several specialists that can say he has a delay.
Hasn't everyone heard every kid is different and they all develop differently and at different speeds.
Daniel has already rolled over both ways and can grab stuff and transfer objects from hand to hand. This amazes both me and Andrew.
Being parents is hard enough but throw in Jonathan's issues and we are always expecting angelic help...
We know we have angelic help and people praying for Jonathan and that is so very comforting to us. Just to know we aren't alone and loved, that means the world to me.
Blessings
Trina