Monday, December 20, 2010
Wednesday, December 8, 2010
Getting Ready
just pics. We are busy getting ready for Christmas and the Arrival of Sarah... The past 5 weeks have been a total flurry of activity at our house..
Week 32 brought some really funky either stomach bug or really late onset of really horrific morning sickness.
I spent most of the week on the High Risk pregnancy unit in the hospital being nursed back to health. It was despite one of our friend's teasing NOT Andrew's cooking.. Praise the Lord we are entering week 37...I am feeling slightly better. We have entered the time of more doctors visits and more testing (to make sure the baby is doing great and we stay pregnant longer).. If we can hold out I will be getting steroid shots 12/29 and 12/30 with Sarah Arriving the Week of January 3rd via c-section.
Sarah's Corner of our room...
Jonathan at the Comporium telephone museum learning some Rock Hill,SC history. Funny thing he didn't know this was a train /textile/cotton town at one point..
It's been really unseasonably cold here... Daniel in a really cute hat playing at a friend's house.
Jonathan riding a fun train at the Annual event Christmasville- Sponsored by the City of Rock Hill and Onlyin Oldtown.com
Vernon Grant( The creator of the characters Snap,Crackle and Pop) drew some other characters including the gnome...He is one of the Characters of the festival. Our kids LOVE dressed up characters. In the Spring the festival's Characters are giant frogs.
We dressed up to go to a Signature Chef's Auction benefiting the March of Dimes of South Carolina. It's not often that we dress up.
Unfortunately I was unable to eat anything although the food looked yummy. The Next day I ended up going to the doctor and being admitted for severe dehydration and to get the nausea under control so I could eat again..
Until I post again... Be abundantly blessed...
Week 32 brought some really funky either stomach bug or really late onset of really horrific morning sickness.
I spent most of the week on the High Risk pregnancy unit in the hospital being nursed back to health. It was despite one of our friend's teasing NOT Andrew's cooking.. Praise the Lord we are entering week 37...I am feeling slightly better. We have entered the time of more doctors visits and more testing (to make sure the baby is doing great and we stay pregnant longer).. If we can hold out I will be getting steroid shots 12/29 and 12/30 with Sarah Arriving the Week of January 3rd via c-section.
Unfortunately I was unable to eat anything although the food looked yummy. The Next day I ended up going to the doctor and being admitted for severe dehydration and to get the nausea under control so I could eat again..
Until I post again... Be abundantly blessed...
Tuesday, November 16, 2010
Fight For Preemies-Prematurity made personal
I thought long and hard about what to write this year.
Here is what I felt is important.
My family lives in South Carolina where statistics from the South Carolina March of Dimes show 1 in every 8 babies are born Prematurely or with some birth defect or complication. This can vary from state to state.
This number thankfully is changing for the better, thanks to research and programs and medicine developed by the March of Dimes.
What causes Prematurity? According to the March of Dimes only in 50 percent of cases do they have a known cause.
Our Story and proof Prematurity can happen to Anyone:
A Tale of 2 pregnancies:
Jonathan was born in March of 2006 after infertility and a miscarriage. He was born at 39 weeks but instead of first cries, he was in respiratory distress. His lungs were severely immature and underdeveloped. He was admitted to the NICU where he was placed on a ventilator and given 3 doses of Surfactant. After some time he deteriorated,he was transferred to Levine Children's Hospital level 4 NICU. (this is our fast forward version).After some time and an oscillating ventilator, he was placed on Nitric Oxide . We nearly were at the point where the neonatal doctors were going to do ECMO.
He began to improve. After 55 days in the NICU he came home on oxygen and monitors. Jonathan was on oxygen until he was six months old. Jonathan is now an active almost 5 year old who continues to amaze us.
Before his younger brother Daniel was conceived I took prenatal vitamins, and ate well. When I was pregnant with him I got more specialized prenatal care. I had a test done called an amniocentesis to check for lung maturity. I received the steroid Betamethasone (to mature his hungs) because his lungs too were immature,just like Jonathan's.
He was born in late July of 2008 with borderline lung maturity. He was born screaming and has yet to stop.
Thanks to the research and the support from the March of dimes, and incredible doctors and neonatal doctors Daniel spent 30 hours in the NICU under observation. Daniel came home with me when I left the hospital on the fourth day. He is a very joyful , loving and active two year old.
We could have had a different outcome had we not learned about what the March of Dimes has researched and what special care we could receive.
I know my family is forever changed by prematurity but we are grateful for what the March of Dimes does for these precious babies.
We are expecting our third baby, Sarah (due after the new year) and I am receiving the same specialized care I received with Daniel. I will be receiving the steroid Betamethasone and a NICU team will be present at her delivery with the drug Surfactant at the ready.
How do you get involved?
Go to The March For Babies website. Sign up and attend an event in your area.
Find out for yourself about the mission of the March of Dimes organization. To have every baby be born healthy.
Get your business or company involved.
The walk in our area is fun and is on April 30th. You can raise money both online and by doing car washes, bake sales and yard sales. You can have a silent auction or a sit down dinner.
Your level of involvement is totally up to you, and the money you raise goes towards life saving research.
This is a celebration for our family and for those touched by prematurity.
Everyone at some point knows someone touched by prematurity. We hope at some point less families are impacted by it and this doesn't happen so often.
Until then we pray for better treatment and more research for a cause and a cure so more mom and dads can bring home healthy babies.
Thanks for visiting :)
Trina and my amazing family Andrew, Jonathan and Daniel
Here is what I felt is important.
My family lives in South Carolina where statistics from the South Carolina March of Dimes show 1 in every 8 babies are born Prematurely or with some birth defect or complication. This can vary from state to state.
This number thankfully is changing for the better, thanks to research and programs and medicine developed by the March of Dimes.
What causes Prematurity? According to the March of Dimes only in 50 percent of cases do they have a known cause.
Our Story and proof Prematurity can happen to Anyone:
A Tale of 2 pregnancies:
Jonathan was born in March of 2006 after infertility and a miscarriage. He was born at 39 weeks but instead of first cries, he was in respiratory distress. His lungs were severely immature and underdeveloped. He was admitted to the NICU where he was placed on a ventilator and given 3 doses of Surfactant. After some time he deteriorated,he was transferred to Levine Children's Hospital level 4 NICU. (this is our fast forward version).After some time and an oscillating ventilator, he was placed on Nitric Oxide . We nearly were at the point where the neonatal doctors were going to do ECMO.
He began to improve. After 55 days in the NICU he came home on oxygen and monitors. Jonathan was on oxygen until he was six months old. Jonathan is now an active almost 5 year old who continues to amaze us.
Before his younger brother Daniel was conceived I took prenatal vitamins, and ate well. When I was pregnant with him I got more specialized prenatal care. I had a test done called an amniocentesis to check for lung maturity. I received the steroid Betamethasone (to mature his hungs) because his lungs too were immature,just like Jonathan's.
Thanks to the research and the support from the March of dimes, and incredible doctors and neonatal doctors Daniel spent 30 hours in the NICU under observation. Daniel came home with me when I left the hospital on the fourth day. He is a very joyful , loving and active two year old.
We could have had a different outcome had we not learned about what the March of Dimes has researched and what special care we could receive.
I know my family is forever changed by prematurity but we are grateful for what the March of Dimes does for these precious babies.
We are expecting our third baby, Sarah (due after the new year) and I am receiving the same specialized care I received with Daniel. I will be receiving the steroid Betamethasone and a NICU team will be present at her delivery with the drug Surfactant at the ready.
How do you get involved?
Go to The March For Babies website. Sign up and attend an event in your area.
Find out for yourself about the mission of the March of Dimes organization. To have every baby be born healthy.
Get your business or company involved.
The walk in our area is fun and is on April 30th. You can raise money both online and by doing car washes, bake sales and yard sales. You can have a silent auction or a sit down dinner.
Your level of involvement is totally up to you, and the money you raise goes towards life saving research.
This is a celebration for our family and for those touched by prematurity.
Everyone at some point knows someone touched by prematurity. We hope at some point less families are impacted by it and this doesn't happen so often.
Until then we pray for better treatment and more research for a cause and a cure so more mom and dads can bring home healthy babies.
Thanks for visiting :)
Trina and my amazing family Andrew, Jonathan and Daniel
Monday, November 1, 2010
Close encounters of the Jonathan Kind
This is our adventures Saturday and Sunday...
This is our family at the Nikki Haley Rally in Rock Hill standing with Nikki Haley. She is running for Governor in SC. She is really great and We all hope she gets elected...Because she seemed more warm and more not politician like (and we all can appreciate that)
We let Jonathan take some pictures and this was one of them... Nikki liked this one and told someone with her that they were fired(joking).. I cannot believe how great this one was. Looks like we're gonna have to get him his own digital camera. :-)
You know those big post cards the political candidates send out asking you to vote for them? Okay Jonathan has been nurturing one in perticular.
The Guy in the picture is Running for US Congress in our district...Mick Mulvaney. We were eating dinner at a place in Downtown Rock Hill before going to Boo ha ha. We were eating dinner when this guy walks in and sits down..Jonathan keeps looking at him and goes Mommy, mommy making the sign like his post card. I recognize what he is doing and look over... Yep he was RIGHT! I grinned and chuckled like I cannot believe this. I get Andrew's attention...Andrew thought we had both lost it until I made him look.. Then he grinned. Jonathan wanted a picture. We grabbed a cell phone and snapped a photo. He got down on Jonathan's level. He talked about his triplet 10 year olds how they have glasses. We then went back to eating...He kept calling Jonathan Monkey man... :-) (we have been trying to go to his bbq's and events but had been totally unable to for God knows what ever reasons)
Jonathan entered the costume contest and won 4th place... We won a ticket to the Renaissance Festival... He had the judges eating out of his paws with his cuteness. Don't know if we'll actually go or not but it seems I was blessed on Saturday.
This afternoon Andrew and I go see the perinatologist. We are actually looking forward to what might normally be a scary visit. This doc is a very sweet man that took care of us with Daniel. Old as dirt and is kinda deaf in one ear but the Kindness of God just comes out of him. We will update you.
Until we come back Be BLESSED.
This is our family at the Nikki Haley Rally in Rock Hill standing with Nikki Haley. She is running for Governor in SC. She is really great and We all hope she gets elected...Because she seemed more warm and more not politician like (and we all can appreciate that)
We let Jonathan take some pictures and this was one of them... Nikki liked this one and told someone with her that they were fired(joking).. I cannot believe how great this one was. Looks like we're gonna have to get him his own digital camera. :-)
The Guy in the picture is Running for US Congress in our district...Mick Mulvaney. We were eating dinner at a place in Downtown Rock Hill before going to Boo ha ha. We were eating dinner when this guy walks in and sits down..Jonathan keeps looking at him and goes Mommy, mommy making the sign like his post card. I recognize what he is doing and look over... Yep he was RIGHT! I grinned and chuckled like I cannot believe this. I get Andrew's attention...Andrew thought we had both lost it until I made him look.. Then he grinned. Jonathan wanted a picture. We grabbed a cell phone and snapped a photo. He got down on Jonathan's level. He talked about his triplet 10 year olds how they have glasses. We then went back to eating...He kept calling Jonathan Monkey man... :-) (we have been trying to go to his bbq's and events but had been totally unable to for God knows what ever reasons)
Jonathan entered the costume contest and won 4th place... We won a ticket to the Renaissance Festival... He had the judges eating out of his paws with his cuteness. Don't know if we'll actually go or not but it seems I was blessed on Saturday.
This afternoon Andrew and I go see the perinatologist. We are actually looking forward to what might normally be a scary visit. This doc is a very sweet man that took care of us with Daniel. Old as dirt and is kinda deaf in one ear but the Kindness of God just comes out of him. We will update you.
Until we come back Be BLESSED.
Friday, October 29, 2010
Dress up- Giants Edition
Jonathan proudly displaying his Giants shirt and cap.
Andrew has been a lifelong fan of the San Francisco Giants. They are currently playing the Texas Rangers in the World Series...
Many of our friends have agreed to not speak to each other until after the World series ends as they are Texas Rangers fans.
Thursday, October 28, 2010
Dress up today- Jonathan Edition
I will have another edition for you soon...
Be blessed!
Thursday, October 21, 2010
Family Day out-AKA Last big trip
Sorry for the red eyes-This was not our Camera...
This was our trip to the South Carolina State Fair
Jonathan on a tractor! This thing needed a ladder. No Joke!
We love talking to the Exhibitors...seeing as Andrew had sheep a while back. These sheep are called Hampshire sheep and this exhibitor was from the state of Georgia...They were nice enough to let our kids pet them. Very sweet animals.
Daniel Petting sheep. He was okay with this and later on was found to be picking up straw and tried feeding it to them.(although the straw is more or less bedding more than food)
He was heard saying "Sheep, Baaaaa!"
Jonathan getting up close and personal(on his own)- almost the sweetest moment with him today.
Jonathan and the Turkey... Well because sometimes he is one. LOL
Daniel watching the sheep show but awesome pic. He was enjoying himself, but really tired. One thing of note: He had zero melt downs... Jonathan had 3. :)
I hope you enjoyed our day out with us. This was probably the last major outing(more than one hour from home) before sister is born.
This was our trip to the South Carolina State Fair
He was heard saying "Sheep, Baaaaa!"
I hope you enjoyed our day out with us. This was probably the last major outing(more than one hour from home) before sister is born.
Wednesday, October 6, 2010
Jonathan at Harves Fest
I cannot believe Youtube posted this so easily onto Blogger!
Great news as well we passed our Diabetes screen for the 28 week visit of our pregnancy. This is actually very historic as I've always needed to take the 3 hour test before I passed.
Saturday, October 2, 2010
The long awaited appointment
We had a great appt. The Genetics doc we saw with Jonathan expedited our handling and literally cut through the BS Red tape we've been dealing with...
First we talked to another genetics counselor..she was terrific and we told her everything we knew and she didn't treat us like we were idiots. Quite nice compared to what we've been through. We found out the truth about our OB. He has explicit instructions to follow everything the peri says In His notes. (so superman is smart enough to know he needs to do the right thing so maybe he lost his mind at the last 2 appts) The Genetics doc shut him up with his findings.
He wanted us to have a scan of Sarah... I filled out a appreciation of great service card(aka WOW card in appreciation and the best ecperience my child has been to as a specialist.)
They took a Looong time looking at the heart and brain and all the vessels. So much that it made me nervous.
She is head down but was apparently sleeping. She is indeed a girl but even they had trouble getting her to cooperate enough to get enough of a shot of her face... booger.
She now gets hiccups and feels like she's gonna come out my girl parts but the cervix is closed and long.
First we talked to another genetics counselor..she was terrific and we told her everything we knew and she didn't treat us like we were idiots. Quite nice compared to what we've been through. We found out the truth about our OB. He has explicit instructions to follow everything the peri says In His notes. (so superman is smart enough to know he needs to do the right thing so maybe he lost his mind at the last 2 appts) The Genetics doc shut him up with his findings.
He wanted us to have a scan of Sarah... I filled out a appreciation of great service card(aka WOW card in appreciation and the best ecperience my child has been to as a specialist.)
They took a Looong time looking at the heart and brain and all the vessels. So much that it made me nervous.
She is head down but was apparently sleeping. She is indeed a girl but even they had trouble getting her to cooperate enough to get enough of a shot of her face... booger.
She now gets hiccups and feels like she's gonna come out my girl parts but the cervix is closed and long.
We talked to another Perinatologist there and honestly I didn't like her as much as the one we've worked with before. Had to totally repeat our story. I hate that with a passion since in this instance more details are in my chart and apparently some do not like reading patient charts..
We were told she called Dr. S. and he said he wants to personally make sure we are taken care of, and apparently what he says has weight because of his expertise and tenure.. That and he is the associate director of that dept. So we will be seen by him on Nov. 1.(one day before Election day).
I love the way that he had of putting my anxious brain away and producing calmer feelings about everything.. (almost like When Jesus would walk into a situation and tell something to happen and it did Like the storm to be still) I can't wait to go. We will be trying to make our case against NST's because she has become a booger with the doppler..
So if anyone has been senidng me thoughts/vibes and prayers Thank you!
So if anyone has been senidng me thoughts/vibes and prayers Thank you!
Friday, September 24, 2010
untitled
I can't find the words to say anything.
I am feeling like I ran out of gas with my energy and my faith so if you can forgive me for not being as quick with my posting... I did write something in regards to 9/11 and what my family did...but I ran out of gas...
How am I doing at nearly 26weeks With baby Sarah... No sinus infection... Just she gets really active at night... I really can't sleep and with her punching my bladder It's quite painful...
Iam really not going to apologize about it...I am NOT that Duggar lady in AR who has 19 kids. I ADORE my children but I am not a real fan of being pregnant. Something about my losses/ and time in the NICU took my innocence away, that and I feel like I am going to be sick the whole time and my anxiety about everything just tends to peak out.
Add in the recent genetic events with Jonathan and I and I''m simply worn out.
Kudos to the genetics doc for trying to get me into see the perinatologist. It was declined due to the fact the OB needs to do it and he's just not. I found a OB practice down at the University of South Carolina and if we don't see anythng happen I will call them... We need to see progress. We have been told things need to be established earlier, rather than later. we all agree, just not my OB and that's not sitting right with anyone.
I have folks ready to go with me and punch him who've been with me through Jonathan's nicu stay and the last pg with Daniel...
Well, That's all from me. For now
I am feeling like I ran out of gas with my energy and my faith so if you can forgive me for not being as quick with my posting... I did write something in regards to 9/11 and what my family did...but I ran out of gas...
How am I doing at nearly 26weeks With baby Sarah... No sinus infection... Just she gets really active at night... I really can't sleep and with her punching my bladder It's quite painful...
Iam really not going to apologize about it...I am NOT that Duggar lady in AR who has 19 kids. I ADORE my children but I am not a real fan of being pregnant. Something about my losses/ and time in the NICU took my innocence away, that and I feel like I am going to be sick the whole time and my anxiety about everything just tends to peak out.
Add in the recent genetic events with Jonathan and I and I''m simply worn out.
Kudos to the genetics doc for trying to get me into see the perinatologist. It was declined due to the fact the OB needs to do it and he's just not. I found a OB practice down at the University of South Carolina and if we don't see anythng happen I will call them... We need to see progress. We have been told things need to be established earlier, rather than later. we all agree, just not my OB and that's not sitting right with anyone.
I have folks ready to go with me and punch him who've been with me through Jonathan's nicu stay and the last pg with Daniel...
Well, That's all from me. For now
Wednesday, September 8, 2010
Kryptonite :)
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Sunday, September 5, 2010
No I don't think YOU can walk on Water...
There will be multiple entries this week...
Not even Superman although this pic shows him flying on water. LOL
Honestly The last week and a half had me feeling lousy..
.It was my sinuses AGAIN. Happens twice a year. I need antibiotics to come out of that spiral.
Being 23 weeks pregnant makes getting treatment harder. That and I had weird symptoms before that which were somehow related to that BUT made it harder to call the right doc. Doc A thought it was ears. Seeing that he doesn't treat ears(he treats pregnant women) He sent me to Doc B(a fam. Medicine doc). Doc B. checked ears and says yes, it's the inner ear (a virus). sends me away with nothing other than "hope you feel better, I don't like treating pregnant women"...
Roll on the Floor Laughing(REALLY?)
By Friday I had gone to the chiropractor and had several points adjusted related to ears, sinuses etc. I felt lousy. The chiropractor is a great guy... I trust he knows how to do his job.
Thursday: I call the OB back and make an appointment for Friday morning.
Friday morning I go in and explain what was going on...OB treats it like the normal visit. with flowing robes and superman cape(see below I will explain). Without laying a hand on me writes out a rx for an antibiotic. Apparently he can see through skin. :-).
They do all the standard stuff...Blood pressure(which is dropping), weight which has stayed stable. Go looking for the baby's heart beat... Only get mine. Lots of jelly and 10 minutes later. and some joking about putting tattoos to find the baby's heartbeat ..I am stressed out as this was one of those anxiety triggers for me that I remember my losses by.
Get taken to the ultrasound room and the doc fumbles a little with it but easily gets it. 157. The explanation is the placenta is right smack in front of her. We probably won't get it for a while by standard doppler. no ultrasound tech as she is only in that office on Wed. and apparently he is the only doc at the satellite office that houses most of the midwives(so screw technology).
Okay, for those of you rolling your eyes at me,let me explain. Apparently I have a uncanny ability to accidentally get docs who are arrogant control freaks who apparently know even other specialties.
My husband looked on the OB's Practice website looking for safe over the counter meds to take during pregnancy and found my docs profile...
Copied from the website but modified to remove his name or identifying info.
Dr. T is a native of Miami, Florida where he was in private practice for fourteen years. While practicing medicine, he was a founding partner in three biomedical device companies and holds various patents. He and his wife N met in Alaska while on vacation and were married at Mount Everest. They both enjoy adventure, travel and seize every opportunity to take their kids with them. They decided to come to Charlotte in 2009 for the wonderful lifestyle and family activities.
Dr. T performs advanced laparoscopy, including laparoscopic hysterectomy, in addition to routine obstetrics and gynecology procedures. He has a special interest and expertise in vulvodynia, vulvar skin diseases and chronic vaginitis. He is board certified in obstetrics and gynecology and is a fellow of the American College of Obstetrics and Gynecology.
Now this wasn't the end of what he found but I won't go into it.
Andrew and I were recently tested for the same Chromosome thing as Jonathan to see if any of our other children are at risk for being effected. The Test came back that I have the same thing going on that chromosome. It explains a lot about my early life but leaves gaping holes as to Daniel and the unborn baby girl who kicks inside.(more on that after I go see the genetics doc on Tuesday)
Anyway, I tell him we got results back on my son and I and he starts the Superman act. I'm thinking the whole time ; So you think you're a genetics doc AND a perinatologist ? He was telling me he wanted the results and he was probably dropping the amnio. Okayyyyy What the H. I hate these types. He hasn't made the referral yet and may not ever at this point. I am thinking of calling the office and giving them another chance to find me a different doc. at this point this is causing me nightmares about the nicu.
If I cannot make any progress in 3-4 weeks: We will go to the hospital, and file a complaint. We will look for another doc in wither another hospital or another city (driving an hour southbound if necessary- Columbia)
I prefer to use the hospital we have used as they have the highest level care in the region, and having been a parent in that nicu I'm more confident in the care THERE.
I will try to get the genetics doc to get whatever I need for the perinatologist and hopefully it shuts up the OB when the Peri says no change.. Hopefully he can also get me into see the peri quite a bit faster (prayers appreciated)
My Thoughts on the Perfect Man.... (These are MINE- if you don't Don't like it you don't have to)
The ONLY perfect man was and is Jesus. He was the only one who walked on WATER (okay before he took Simon Peter on a wave walking journey).
He was the only one who saw someone's life and told her about her life(without her knowing Him). Woman at the Well..
There is no one like Him. And although you can try being like Him. He is the only ONE who is perfect... He is the Ultimate King and my Body pierced Super hero.
No amount of schooling or credentials can ever trump that.
Blessed
Not even Superman although this pic shows him flying on water. LOL
Honestly The last week and a half had me feeling lousy..
.It was my sinuses AGAIN. Happens twice a year. I need antibiotics to come out of that spiral.
Being 23 weeks pregnant makes getting treatment harder. That and I had weird symptoms before that which were somehow related to that BUT made it harder to call the right doc. Doc A thought it was ears. Seeing that he doesn't treat ears(he treats pregnant women) He sent me to Doc B(a fam. Medicine doc). Doc B. checked ears and says yes, it's the inner ear (a virus). sends me away with nothing other than "hope you feel better, I don't like treating pregnant women"...
Roll on the Floor Laughing(REALLY?)
By Friday I had gone to the chiropractor and had several points adjusted related to ears, sinuses etc. I felt lousy. The chiropractor is a great guy... I trust he knows how to do his job.
Thursday: I call the OB back and make an appointment for Friday morning.
Friday morning I go in and explain what was going on...OB treats it like the normal visit. with flowing robes and superman cape(see below I will explain). Without laying a hand on me writes out a rx for an antibiotic. Apparently he can see through skin. :-).
They do all the standard stuff...Blood pressure(which is dropping), weight which has stayed stable. Go looking for the baby's heart beat... Only get mine. Lots of jelly and 10 minutes later. and some joking about putting tattoos to find the baby's heartbeat ..I am stressed out as this was one of those anxiety triggers for me that I remember my losses by.
Get taken to the ultrasound room and the doc fumbles a little with it but easily gets it. 157. The explanation is the placenta is right smack in front of her. We probably won't get it for a while by standard doppler. no ultrasound tech as she is only in that office on Wed. and apparently he is the only doc at the satellite office that houses most of the midwives(so screw technology).
Okay, for those of you rolling your eyes at me,let me explain. Apparently I have a uncanny ability to accidentally get docs who are arrogant control freaks who apparently know even other specialties.
My husband looked on the OB's Practice website looking for safe over the counter meds to take during pregnancy and found my docs profile...
Copied from the website but modified to remove his name or identifying info.
Dr. T is a native of Miami, Florida where he was in private practice for fourteen years. While practicing medicine, he was a founding partner in three biomedical device companies and holds various patents. He and his wife N met in Alaska while on vacation and were married at Mount Everest. They both enjoy adventure, travel and seize every opportunity to take their kids with them. They decided to come to Charlotte in 2009 for the wonderful lifestyle and family activities.
Dr. T performs advanced laparoscopy, including laparoscopic hysterectomy, in addition to routine obstetrics and gynecology procedures. He has a special interest and expertise in vulvodynia, vulvar skin diseases and chronic vaginitis. He is board certified in obstetrics and gynecology and is a fellow of the American College of Obstetrics and Gynecology.
Now this wasn't the end of what he found but I won't go into it.
Andrew and I were recently tested for the same Chromosome thing as Jonathan to see if any of our other children are at risk for being effected. The Test came back that I have the same thing going on that chromosome. It explains a lot about my early life but leaves gaping holes as to Daniel and the unborn baby girl who kicks inside.(more on that after I go see the genetics doc on Tuesday)
Anyway, I tell him we got results back on my son and I and he starts the Superman act. I'm thinking the whole time ; So you think you're a genetics doc AND a perinatologist ? He was telling me he wanted the results and he was probably dropping the amnio. Okayyyyy What the H. I hate these types. He hasn't made the referral yet and may not ever at this point. I am thinking of calling the office and giving them another chance to find me a different doc. at this point this is causing me nightmares about the nicu.
If I cannot make any progress in 3-4 weeks: We will go to the hospital, and file a complaint. We will look for another doc in wither another hospital or another city (driving an hour southbound if necessary- Columbia)
I prefer to use the hospital we have used as they have the highest level care in the region, and having been a parent in that nicu I'm more confident in the care THERE.
I will try to get the genetics doc to get whatever I need for the perinatologist and hopefully it shuts up the OB when the Peri says no change.. Hopefully he can also get me into see the peri quite a bit faster (prayers appreciated)
My Thoughts on the Perfect Man.... (These are MINE- if you don't Don't like it you don't have to)
The ONLY perfect man was and is Jesus. He was the only one who walked on WATER (okay before he took Simon Peter on a wave walking journey).
He was the only one who saw someone's life and told her about her life(without her knowing Him). Woman at the Well..
There is no one like Him. And although you can try being like Him. He is the only ONE who is perfect... He is the Ultimate King and my Body pierced Super hero.
No amount of schooling or credentials can ever trump that.
Blessed
Wednesday, August 25, 2010
Jonathan- Back to school
Here's an interview I did today before we got out of the car.
Jonathan's Back to school interview Fall 2010 from Trina Hoover on Vimeo.
About the hand on the car: It's a rule we have at our house that when we are waiting to get in the car that we put at least one hand on the vehicle. This way, mommy who typically has only one hand free can unlock the door and then attend to helping everyone get in the car, without having kids running around the parking lot like wild animals.
I hope you enjoyed these as much as I did... There are 4 kids in his class and our hope for him is that he'll learn to sit still and attend to what everyone else is... We will be working on potty training and trying to see how much he can try to do with the normal class next door. I hope he gets pt so his strength can increase. He got home at 230 pm to a happy mommy waiting for him. I hope he has an awesome year.
Be blessed
Be blessed.
Jonathan's Back to school interview Fall 2010 from Trina Hoover on Vimeo.
Be blessed
Be blessed.
Monday, August 16, 2010
Our Family
8/11 Ultrasound
We started off really Early...
Took the boys over to Aunt Barbara's... Big Giant Thanks btw to her...sorry for not confirming the day before.
8 am is way too early in my own opion.. Dropped them off having had fed both of them.
Got back in the car with Andrew. We drove to the South Park area of Charlotte. Got there with 10 minutes to spare...Andrew saw something in the lobby...it was a pic of our OB. Apparently he is new to the practice...not new to this area or his profession. Apparently, Docs can relocate too..LOL.
Got into the ultrasound room and they put the thingy on my belly and all we saw was a bouncing wiggly, thing on the screen. Boy we cannot wait to see this one's personality. Please lord let it be quieter.
As You can SEE New Beginning is a ___GIRL!!!!!!!!!!!!!- Named Sarah Grace
There were no visible boy parts sticking out there.. You tell me how happy everyone was... There were 40 responses on my facebook page.
Notice the hands...She already knows the family sign for way cool which comes from a Hawaiian Muhaullo
Sorry these weren't clearer... The Machine was ancient and my placenta is anterior(in front) AGAIN. She was also camera shy and super active often turning her back.
. All I can say is Southern DIVA..
Dad was overwhelmed but something cool happened after. I thought about something that happened after our second loss Aug 31.2007. Andrew was praying and he felt that baby was a girl who he had named Hannah. He prayed some more and He heard the Lord speak to him and say that he would hold a daughter.
We had forgotten that until I had a quiet moment that day.
We saw the OB and had a slightly easier time talking(although not much)
We see the specialist after 28w, and we have a planning meeting etc to plan our delivery.
We are hoping for a clear and mature amnio followed by steroids.
Later we went to a genetics apointment at the children's hospital. It went well in our opinion it was more helpful to us in getting an understanding of why Jonathan is delayed developmentally. There is a tiny deletion on a gene responsible for development.It was a little smaller than most the doctor had seen so this is hopeful..
We got through our appointment and went home...
We were tired but happy, although Andrew and I had to get blood drawn to have the same blood test to see if it was just Jonathan or do we have to worry about Daniel and Sarah.
That would be something you could pray for(that is if you pray)
Be Blessed
We started off really Early...
Took the boys over to Aunt Barbara's... Big Giant Thanks btw to her...sorry for not confirming the day before.
8 am is way too early in my own opion.. Dropped them off having had fed both of them.
Got back in the car with Andrew. We drove to the South Park area of Charlotte. Got there with 10 minutes to spare...Andrew saw something in the lobby...it was a pic of our OB. Apparently he is new to the practice...not new to this area or his profession. Apparently, Docs can relocate too..LOL.
Got into the ultrasound room and they put the thingy on my belly and all we saw was a bouncing wiggly, thing on the screen. Boy we cannot wait to see this one's personality. Please lord let it be quieter.
There were no visible boy parts sticking out there.. You tell me how happy everyone was... There were 40 responses on my facebook page.
. All I can say is Southern DIVA..
Dad was overwhelmed but something cool happened after. I thought about something that happened after our second loss Aug 31.2007. Andrew was praying and he felt that baby was a girl who he had named Hannah. He prayed some more and He heard the Lord speak to him and say that he would hold a daughter.
We had forgotten that until I had a quiet moment that day.
We saw the OB and had a slightly easier time talking(although not much)
We see the specialist after 28w, and we have a planning meeting etc to plan our delivery.
We are hoping for a clear and mature amnio followed by steroids.
Later we went to a genetics apointment at the children's hospital. It went well in our opinion it was more helpful to us in getting an understanding of why Jonathan is delayed developmentally. There is a tiny deletion on a gene responsible for development.It was a little smaller than most the doctor had seen so this is hopeful..
We got through our appointment and went home...
We were tired but happy, although Andrew and I had to get blood drawn to have the same blood test to see if it was just Jonathan or do we have to worry about Daniel and Sarah.
That would be something you could pray for(that is if you pray)
Be Blessed
Thursday, July 29, 2010
Facing the Giants Part infinitum
Is it just me or does it seem like it's easier to go to Urgent Care and deal with my health care that it is to get decent prenatal care. I have decent insurance but in the area I live in people on Medicaid can often get in to see specialists sooner than I can even seem to reach a live person and get through all the red tape bull.
Background- About a year after I had Jonathan and went through the Nicu journey he had...we decided we needed to consult someone and see if there was anything we could do. We found a perinatologist who did some research on Jonathan and our case and got back to us.. He set up a plan of care..hoping the next time we were pregnant that we would be able to discover the reason that had happened or if it was a fluke.
We got pregnant with Daniel and switched to another OB Practice..at about 12 weeks... Had the worst time trying to get any care at all from the recommendations the specialist had made. OB made our lives hell and made me suffer extra for wanting to fight for him. Finally got to the amniocentesis and found out that what we had was not another fluke but likely to happen again the same as Jonathan.(lungs were not ready) We held off delivery until after another amnio in 10 days.... The results of that came back borderline so I got steroids.(had to fight for that)... 3 days later we had Daniel who was born at nearly 41w weighing over 10 pounds. His lungs were borderline but otherwise the steroids did something.
Fast forward to right now...
I've had the worst problems with getting anyone to communicate, And it seems everyone's just plain forgotten me. So we go through a super drawn out process of getting a referral which probably won't go through , and some big frustration.
So, I just keep asking myself how worth it is all of the fighting that we did to prove we had a real issue...Just to find out we in fact, do have an issue and need care... Only to have to start screaming bloody murder because we can't get any decent care.
Here's a question....How much is it worth KNOWING we have a problem, when there is NO ACTION being taken. That will only guarantee we return to the NICU for a long stay or even worse.
I am feeling upset about all of this but any time I do...Jonathan jumps up and comes and grins at me and gives me an "I love you" and a hug.. Here is an ultrasound pic we have from last week.
Just a NOTE: I changed OB's Earlier in this pregnancy hoping I could avoid the stress the last OB caused...
Background- About a year after I had Jonathan and went through the Nicu journey he had...we decided we needed to consult someone and see if there was anything we could do. We found a perinatologist who did some research on Jonathan and our case and got back to us.. He set up a plan of care..hoping the next time we were pregnant that we would be able to discover the reason that had happened or if it was a fluke.
We got pregnant with Daniel and switched to another OB Practice..at about 12 weeks... Had the worst time trying to get any care at all from the recommendations the specialist had made. OB made our lives hell and made me suffer extra for wanting to fight for him. Finally got to the amniocentesis and found out that what we had was not another fluke but likely to happen again the same as Jonathan.(lungs were not ready) We held off delivery until after another amnio in 10 days.... The results of that came back borderline so I got steroids.(had to fight for that)... 3 days later we had Daniel who was born at nearly 41w weighing over 10 pounds. His lungs were borderline but otherwise the steroids did something.
Fast forward to right now...
I've had the worst problems with getting anyone to communicate, And it seems everyone's just plain forgotten me. So we go through a super drawn out process of getting a referral which probably won't go through , and some big frustration.
So, I just keep asking myself how worth it is all of the fighting that we did to prove we had a real issue...Just to find out we in fact, do have an issue and need care... Only to have to start screaming bloody murder because we can't get any decent care.
Here's a question....How much is it worth KNOWING we have a problem, when there is NO ACTION being taken. That will only guarantee we return to the NICU for a long stay or even worse.
I am feeling upset about all of this but any time I do...Jonathan jumps up and comes and grins at me and gives me an "I love you" and a hug.. Here is an ultrasound pic we have from last week.
Just a NOTE: I changed OB's Earlier in this pregnancy hoping I could avoid the stress the last OB caused...
Sunday, June 27, 2010
A Father's Promise Fulfilled
I really don't think that Andrew was aware of what he was doing other than trying to have fun with his family.
I really had to remind him of something that happened while Jonathan was on Nitric Oxide.
\While we were there in the NICU with Jonathan we felt absolutely powerless, and the uncertainty over what the future held was really something that certainly bothered us.
Who wouldn't have been. At about the time Jonathan was put on the Nitric he started to speak to Jonathan about all the things he wanted to share with Jonathan as a dad. Among one of many things he told Jonathan he wanted to do was take him to a baseball game.
At the time my heart broke for Andrew. After all the time it took us to even conceive Jonathan...The thought of him not making it was really, extremely upsetting.
Okay Fast forward to last night. Jonathan had a blast with Andrew. Daniel and I had fun too. It was the kids,and I's first game also. Although it was really muggy out and a wee bit too warm , I really enjoyed it. I would do this again although I would get seats that had wheelchair access and stick my stroller there.
The team won by one point in the 9th inning and after there were fireworks.
Except one little thing: Jonathan is TERRIFIED by anything that sounds like thunder. I mean Fight or Flight(mostly get me out of here) It was really cool to actually be in the stadium watching it. I have in the past been on the freeway driving home from Charlotte on a Saturday night and seen it that way. This was 100 times better this way although Jonathan didn't agree with me.
Neither did Daniel as he became a clingy boy on Dad to the point where Andrew felt like he was being "constricted".
Well ,I just wanted to share that. Andrew doesn't realize how much that type of stuff touches me. That was too sweet to share.
Be blessed.
Friday, June 25, 2010
Thought of the day
I want to make a video but need some help. I want to be able to tell Jonathan's story on video, and need some advice on where to do this... This would probably go on his page here on this blog and on my March of Dimes page.
I will be getting Andrew to follow me in to my appointment and get my peri to talk about it.
I was reading our plan of action and noticed that we are supposed to get an ultrasound 1x a month... My new OB missed this. Should I mention this or should I just wait...
I am facing my giant of fear and although I'm currently at a place where I need some emotional support, I know I need to take this a week at a time and stop looking towards the end. That has been the thing overwhelming me.
I just need to stop and take a deep breath and live in today.
That is the Thought for the day
I will be getting Andrew to follow me in to my appointment and get my peri to talk about it.
I was reading our plan of action and noticed that we are supposed to get an ultrasound 1x a month... My new OB missed this. Should I mention this or should I just wait...
I am facing my giant of fear and although I'm currently at a place where I need some emotional support, I know I need to take this a week at a time and stop looking towards the end. That has been the thing overwhelming me.
I just need to stop and take a deep breath and live in today.
That is the Thought for the day
Wednesday, June 16, 2010
Now that my break is over
I need a nap.
Life has been crazy here at the Hoover Houselhold. Trying to figure out how to potty train Jonathan who has resisted the attempts of everyone who has tried isn't easy. Got Ideas? Let me hear em.
Other than that things are doing okay relatively. Daniel has learned to scream for attention. The night terrors we were experiencing with him since taking him off of Zyrtec have disappeared. Thank the Lord. We were all very tired there for a while.
Jonathan can identify most of his primary colors through sign. we are noticing that he can identify some letters.
I am wondering if some of Jonathan's behavior is normal though. When the lights went out the other day he became a worried at an almost neurotic level ,even when I wasn't worried at all.
He became the same way when a number of severe thunderstorms were in our area. He also does this when Andrew leaves the car when we are all out. I don't know where all this came from but I'd appreciate it if he didn't do this any more. ;)
Ahhh the joys of being 4.
As for me I see my OB tomorrow hoping to hear a nice heartbeat. I am also very nervous and until I hear that little heart beating I will be holding my breath. You can pray for me, I'd definitely appreciate it.
Trying to find some things to do with Jonathan this summer that will make him use his noggin. I've been letting him help me load the dishwasher and take clothes out of the dryer. He will begin receiving commissions soon (different from allowance see Dave Ramsey's Website )
We saw his behavior ease up when we gave him something to do.
That's all for now
Be Blessed
Thursday, May 27, 2010
The Last Day of School for Jonathan
Here is the interview with Jonathan on his last day of school on May 26,2010
I enjoyed this but uploading the video itself was a pain in the(you pick a word)I finally got it uploaded on Vimeo...(which I am trying out before I get pro)
I found out about it being the last day only the night before...Had I more time I would have done something for the teacher.
Enjoy and be blessed
Saturday, May 22, 2010
Life at the Hoover house-Breaking news
What's Happening at the Hoover Household?
We are expecting another blessing around New Year's. Yep we are pregnant..
Because we have experienced the pain of having a miscarriage, we decided to wait until we went found a new OB, got and ultrasound etc.
We are due Jan. 1, 2011 and will probably if we can go as close to it or go over. We went 5 days over with Daniel.
Exciting? You bet. Scary... you know me well enough. Why yes, yes it is (in a way of Ferb from Disney's Phinneas and Ferb) so I considered this as a call to challenge myself to face it and face the Giant.
Will you come on this journey with me?
Be blessed
We are expecting another blessing around New Year's. Yep we are pregnant..
Because we have experienced the pain of having a miscarriage, we decided to wait until we went found a new OB, got and ultrasound etc.
Exciting? You bet. Scary... you know me well enough. Why yes, yes it is (in a way of Ferb from Disney's Phinneas and Ferb) so I considered this as a call to challenge myself to face it and face the Giant.
Will you come on this journey with me?
Be blessed
Monday, May 10, 2010
Sunday, April 25, 2010
March for Babies 2010
Yesterday we did our yearly March For Babies walk... It was amazing. more than 300 people came and walked as teams that had raised money for the March of Dimes.
If you gave or walked Thank You's go out to all. This is an amazing organization which 93% of every dollar of funds raised go to research
Here is a video of us getting to the finish line.
Which totally gave me a flashback of this. Thanks Andrew
The kids were okay during the whole event until after we came back. Then they were tired and needed naps and behavior reflected that. Screaming tantrums and melt downs.
When we got home we put everyone in bed without too much of a fight and the slept a solid two and a half hours.
Be very blessed
Sunday, April 18, 2010
What's up?
This week in our family:
We found out that Daniel had an ear infection and a tummy bug. When we were at the pediatrician's after getting a antibiotic shot we found out just how many pediatricians and nurses were there. Daniel's legs got a little swollen and after some ice and time discovered he probably had a reaction either to the bandaid itself or the adhesive in the bandaid. Mommy has the same problem with the adhesives but not to the degree he had it.
He hates the antibiotic.. The tummy bug passed and he became much happier.
Jonathan had a neurologist appointment to check his cafe au lait spots. We just wanted to see if there is something lurking in the future.
He needs some blood work so he can get an MRI at the Children's Hospital (as they like to sedate these kids so it's not traumatic).
We will be going for genetic counseling to check for some stuff related to something called NF.(Aug)
We just would like to know again if there is something down the line we need to be watching for.
There was no talk of anything else thank God.
Right now I keep being reminded about all the miracles that keep happening. Yesterday a couple of people I know had their 3rd son. I don't know exact details but hopefully when the baby came out he was screaming.
I remember when Daniel came out when he was born he was screaming. Best sound in our entire life and he at times continues to scream. At the time we were expecting him to be in respiratory distress. we had gotten less than desirable results during the amniocentesis. Our hearts sank and we prepared for a journey through the nicu. It was awful and we were terrified.
After getting betamethasone over two days and on the day Daniel was born we spoke to neonatal staff and the OR staff and they wanted his birth to be amazing and a source of great memories. Andrew was able to wear regular scrubs instead of the plastic yellow gown we spent so much timesweating wearing with Jonathan.
The reason I say this is my friends are currently in the nicu and by everything I can read in their status updates it sounded like Henry is under observation. One hour is too long to be in the Nicu and I pray that he can be given the all clear and be reunited with his mommy and Daddy and his 2 brothers.
I hope they can also use the opportunity being that they are pastors to bring the message of love into the Nicu..
Okay enough of me...I must tell you after Jonathan crashed in the Nicu (and was put on Nitric)I decided to start praying for the other families. I started cheering more when babies improved and they started cheering when we got great news.There was not a lot of privacy but we all respected each other's space. we saw big things like babies only spending a couple days on ECMO(last ditch thing) and come out strong and got to go home like a normal baby.
Okay be blessed and I will get pics up from the Walk this week. If you can't walk with us, Give. As my hero Naked Lizard (Toni) say... Miracles happen...They just take time. :)
We found out that Daniel had an ear infection and a tummy bug. When we were at the pediatrician's after getting a antibiotic shot we found out just how many pediatricians and nurses were there. Daniel's legs got a little swollen and after some ice and time discovered he probably had a reaction either to the bandaid itself or the adhesive in the bandaid. Mommy has the same problem with the adhesives but not to the degree he had it.
He hates the antibiotic.. The tummy bug passed and he became much happier.
Jonathan had a neurologist appointment to check his cafe au lait spots. We just wanted to see if there is something lurking in the future.
He needs some blood work so he can get an MRI at the Children's Hospital (as they like to sedate these kids so it's not traumatic).
We will be going for genetic counseling to check for some stuff related to something called NF.(Aug)
We just would like to know again if there is something down the line we need to be watching for.
There was no talk of anything else thank God.
Right now I keep being reminded about all the miracles that keep happening. Yesterday a couple of people I know had their 3rd son. I don't know exact details but hopefully when the baby came out he was screaming.
I remember when Daniel came out when he was born he was screaming. Best sound in our entire life and he at times continues to scream. At the time we were expecting him to be in respiratory distress. we had gotten less than desirable results during the amniocentesis. Our hearts sank and we prepared for a journey through the nicu. It was awful and we were terrified.
After getting betamethasone over two days and on the day Daniel was born we spoke to neonatal staff and the OR staff and they wanted his birth to be amazing and a source of great memories. Andrew was able to wear regular scrubs instead of the plastic yellow gown we spent so much time
The reason I say this is my friends are currently in the nicu and by everything I can read in their status updates it sounded like Henry is under observation. One hour is too long to be in the Nicu and I pray that he can be given the all clear and be reunited with his mommy and Daddy and his 2 brothers.
I hope they can also use the opportunity being that they are pastors to bring the message of love into the Nicu..
Okay enough of me...I must tell you after Jonathan crashed in the Nicu (and was put on Nitric)I decided to start praying for the other families. I started cheering more when babies improved and they started cheering when we got great news.There was not a lot of privacy but we all respected each other's space. we saw big things like babies only spending a couple days on ECMO(last ditch thing) and come out strong and got to go home like a normal baby.
Okay be blessed and I will get pics up from the Walk this week. If you can't walk with us, Give. As my hero Naked Lizard (Toni) say... Miracles happen...They just take time. :)
Friday, April 9, 2010
Shirt and our walk
make custom gifts at Zazzle
There is only Two weeks left and then we walk.
Walk day is an exciting day for us. Along with the money we raise, this is a day we celebrate the fact that Jonathan would not be here if it weren't for The research and the medicine that the march of dimes funded and developed... Secondly without having Jonathan, we wouldn't have had the opportunity to get special care while pregnant with Daniel and have an amniocentesis and betamethasone ;which saved us a lot of heartache and time in the Nicu... Jonathan became Daniel's hero the day Daniel was born.
There is still enough time if you want to walk with us... Just go click on my March of Dimes Widget. There are 2 buttons : Give or Donate or Walk With me.
We would LOVE to see all of you give or even better Join me in the walking part. You don't have to walk the entire thing.
I posted a long hidden video I just discovered on our team page. It was of us with Jonathan when he was on the oscillator at the new hospital. He had just been moved.
Be blessed and Help me get the bar to move by giving...
If you decide to give you can also leave a message that will show up.
Please help us Reach our Goal... These Babies are worth it... Trust me
Thursday, April 1, 2010
I'm not Shopping
Just a thought...
Ever visit a church or just join a mommies group or a life group and totally feel like you took someone else's seat?
This really did happen.
Recently we tried to change churches and that is how I felt. I really didn't want to feel that way. Even though I knew a ton of people there. It was just like playing 6 degrees of Kevin Bacon but with Andrew and Trina.
Honestly it was probably more of me and my stuff than anyone else. I was hoping being around people I have known for a long time would help lessen anxiety I've been dealing with for a couple of years. Turns out that isn't really the case and it's the same whether I am known by a lot of people or totally invisible (only a few know us).
We will try this again when Andrew's week end part time Pizza throwing changes a little bit. Logistical issues are our main issue.
We felt like the grace or "want to" had warn off or left where we were. We prayed about it and so we tried changing churches. No we are NOT church shopping at all. We were feeling it was time to go there but apparently it's a timing issue. Jonathan was happy (good sign but not a good barometer of how great a place it is).
It wasn't how much love we felt from a lot of people that were there or whether or not the pastor came by and shook hands with us. We love him by the way. It wasn't the greeters or the ushers or the kids folks. It was me. I felt like although they knew me... things in my life had changed and I have no way of explaining that to anyone.
I was back to feeling like my heart was shattered again. Like I have to explain what happened that caused me and my family heartache and pain, they all knew.
I found myself putting up walls trying to insulate myself from what I felt was an inevitable betrayal. Funny how I felt that way when most of the core group had been with us during our pregnancy with Jonathan and through the nicu stay... But I will say this again...It's me, Not you. We will try this again as it's more of a when than an if.
I guess it is a forgiveness issue and the hurt that came from it.(not to mention some really nasty memories from the past).
We went back to Forest Hill on Sundays, and although we have pulled Daniel out of the nursery indefinitely. Feeling like we were being burnt to a crisp every 3 weeks(working as a volunteer). I was exhausted meanwhile I was working though some crazy emotional stuff. Not a great mix. So we stepped down... we are still able to worship in a family viewing room.
I feel like some of the grace was renewed and I went back to the life group I was enjoying, I love being stretched and these ladies and I have learned so much about what we believe about praying and who God the Three-in-one is...
The above happened too for a while and I had panic attacks on the way there for a few weeks until I started to KNOW these people. That in itself was unbelievable how healing that was.
As I write this I am suffering from a sinus infection that sparred from my spring allergies and yes folks The trees are a blooming big time due to all the rain we had.
As I write this I am looking at a stack of papers I need to fill out before Jonathan's neurology appt. on the 14th of Apr, at this point I need some help filling this out or I feel I am not doing Jonathan a good thing by taking him... May of these are about his behavior so I might email his teacher and ask what she's seen.
I am a great advocate for him. We are going to go get his spots on his torso looked at they are called caffe au lait spots and look as though someone spilled coffee on him.
I won't be giving you a link to info like normal and I ask you not to send me any info on this as I need to stay in a calm place to appropriately be Jonathan's advocate.
I only tend to post conditions after the fact we know something. I like to not go looking for trouble and search the internet for this. It makes me fret full. I have several friends I've made a pact with to not do this or they kick my tail.
Not what I want or need to feel walking into the unknown... I just hope God steps in and does something special for Jonathan.
I have the wonderful memories of our first walk (March of Dimes) with Jonathan(while I was preggo with Daniel) and how special it was to be around other special kids like him who fought hard to be here.. I especially enjoyed being able to pray for and record them releasing a balloon in honor of their friend's baby born at 25 weeks and fighting.
It was great we released balloons in honor of Sarah's Daughter Kenadie and Shayli (naked lizard). I always shed tears and always come away feeling a lot better. I cannot wait for this year as maybe we tell our story, and how some of you helped me finally take some advice to go see a perinatologist..
That is so awesome.
anyways be Blessed
Ever visit a church or just join a mommies group or a life group and totally feel like you took someone else's seat?
This really did happen.
Recently we tried to change churches and that is how I felt. I really didn't want to feel that way. Even though I knew a ton of people there. It was just like playing 6 degrees of Kevin Bacon but with Andrew and Trina.
Honestly it was probably more of me and my stuff than anyone else. I was hoping being around people I have known for a long time would help lessen anxiety I've been dealing with for a couple of years. Turns out that isn't really the case and it's the same whether I am known by a lot of people or totally invisible (only a few know us).
We will try this again when Andrew's week end part time Pizza throwing changes a little bit. Logistical issues are our main issue.
We felt like the grace or "want to" had warn off or left where we were. We prayed about it and so we tried changing churches. No we are NOT church shopping at all. We were feeling it was time to go there but apparently it's a timing issue. Jonathan was happy (good sign but not a good barometer of how great a place it is).
It wasn't how much love we felt from a lot of people that were there or whether or not the pastor came by and shook hands with us. We love him by the way. It wasn't the greeters or the ushers or the kids folks. It was me. I felt like although they knew me... things in my life had changed and I have no way of explaining that to anyone.
I was back to feeling like my heart was shattered again. Like I have to explain what happened that caused me and my family heartache and pain, they all knew.
I found myself putting up walls trying to insulate myself from what I felt was an inevitable betrayal. Funny how I felt that way when most of the core group had been with us during our pregnancy with Jonathan and through the nicu stay... But I will say this again...It's me, Not you. We will try this again as it's more of a when than an if.
I guess it is a forgiveness issue and the hurt that came from it.(not to mention some really nasty memories from the past).
We went back to Forest Hill on Sundays, and although we have pulled Daniel out of the nursery indefinitely. Feeling like we were being burnt to a crisp every 3 weeks(working as a volunteer). I was exhausted meanwhile I was working though some crazy emotional stuff. Not a great mix. So we stepped down... we are still able to worship in a family viewing room.
I feel like some of the grace was renewed and I went back to the life group I was enjoying, I love being stretched and these ladies and I have learned so much about what we believe about praying and who God the Three-in-one is...
The above happened too for a while and I had panic attacks on the way there for a few weeks until I started to KNOW these people. That in itself was unbelievable how healing that was.
As I write this I am suffering from a sinus infection that sparred from my spring allergies and yes folks The trees are a blooming big time due to all the rain we had.
As I write this I am looking at a stack of papers I need to fill out before Jonathan's neurology appt. on the 14th of Apr, at this point I need some help filling this out or I feel I am not doing Jonathan a good thing by taking him... May of these are about his behavior so I might email his teacher and ask what she's seen.
I am a great advocate for him. We are going to go get his spots on his torso looked at they are called caffe au lait spots and look as though someone spilled coffee on him.
I won't be giving you a link to info like normal and I ask you not to send me any info on this as I need to stay in a calm place to appropriately be Jonathan's advocate.
I only tend to post conditions after the fact we know something. I like to not go looking for trouble and search the internet for this. It makes me fret full. I have several friends I've made a pact with to not do this or they kick my tail.
Not what I want or need to feel walking into the unknown... I just hope God steps in and does something special for Jonathan.
I have the wonderful memories of our first walk (March of Dimes) with Jonathan(while I was preggo with Daniel) and how special it was to be around other special kids like him who fought hard to be here.. I especially enjoyed being able to pray for and record them releasing a balloon in honor of their friend's baby born at 25 weeks and fighting.
It was great we released balloons in honor of Sarah's Daughter Kenadie and Shayli (naked lizard). I always shed tears and always come away feeling a lot better. I cannot wait for this year as maybe we tell our story, and how some of you helped me finally take some advice to go see a perinatologist..
That is so awesome.
anyways be Blessed
Wednesday, March 24, 2010
March For Babies
As Promised Yesterday on Facebook I asked if anyone Had a March of Dimes Team They were walking with...
So Far I have 3 That have shared their walk page.... I will add more if anyone
Each of these Teams are walking with a passion. Some are walking for their own children who were born prematurely, Others are walking for their Children who just were born too small and too soon, and were born still.
Each Of these teams can tell you. This organization matters.This is a cause that effects everyone.
My Teams Widget is on this page(on one of these sidebars) You can give securely on any of these walk pages and you can use your company's matching gifts programs (if they offer it).
Sarah's Team- The Baby Byrd's- She also has a blog Here
So Far I have 3 That have shared their walk page.... I will add more if anyone
Each of these Teams are walking with a passion. Some are walking for their own children who were born prematurely, Others are walking for their Children who just were born too small and too soon, and were born still.
Each Of these teams can tell you. This organization matters.This is a cause that effects everyone.
My Teams Widget is on this page(on one of these sidebars) You can give securely on any of these walk pages and you can use your company's matching gifts programs (if they offer it).
Sarah's Team- The Baby Byrd's- She also has a blog Here
Alyssa Auger- Mommy and Me of The Eastern Panhandle
Tracy Stanek- Team Zoe E.
Each of Them has a story and they would be glad to tell you why they walk.
In Our family we have several- 2 of them are Jonathan and Daniel. Their stories are on our walk page and all the way through this blog. Just ask and I will tell you.
Soon their stories will have their very own dedicated page Right here on this blog so you don't have to go Digging through all our entries..
Be Blessed
Wednesday, March 17, 2010
Peddle a tricycle Jonathan!
As Promised Here is the video of Jonathan reaching his goal of Peddling a bike. The voice in the background is that of his teacher. Mrs. A
Jonathan's Birthday at school. Love the hat! :) Last year on this day he was starting school!
Birthday candles---There are four of them
Blessings
Monday, March 15, 2010
Happy 4th Birthday
Jonathan Andrew!!!!
You were born on March 16,2006 at 12:58 pm, Weighing 8 pounds 14 oz. 20 1/2 inches long. You were The son who made me a MOMMY. You are very loved and very much a giant piece of all of us. You are the first live born kid we had You are a PAL Baby.
.
Happy Fourth Birthday to My Hero. You are so incredible. I love watching you reach for all of your goals with the determination and the heart you do..
It's so hard to believe how 4 years ago you were born. You've fought and won many battles as early on in your life you were fighting for your life. We are so very blessed you chose to stay with us.
Miracles happen and you just happen to be looking at one. He can peddle a bike (will post that here as soon as I get the video from his teacher from when he finally met this goal)
Happy Birthday to "The sweetest Child anyone's ever taught" and to Mr. J our Little man...
Love
Mommy, Daddy, Daniel and all of your friends.
Please Consider either Giving to The March of Dimes or Walking with us on April 24th. Here is our Page
So Very Blessed to have you!
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