More pictures and our long awaited update... and NO We are not pregnant...
Now for our update: We were able to get in to be seen by the best genetics clinic in the area. Both boys were seen! Great news is that Daniel will now be tested with the full microarray (that looks through all 23 chromosomes). He previously had one area checked to see if he had the same chromosome deletion his brother and mommy have, which lucky for Daniel he does not have.
The only thing is that with the implementation of O'care or ACA most insurance won't pay for this test... so we are waiting on our insurance to approve. This test costs $1200. SO at least we have progress in the right direction and not the usual brick wall we've been banging our head against , it seems.
I used to pray for big things to happen, because I had faith for it but I think, back in the NICU with Jonathan, God had another idea... He began to really emphasize the little things that add up like pennies in a jar, that begin to add up to something way bigger than we ever imagined.
Don't get me wrong... BIG things did happen in that NICU in Charlotte. Everywhere around us there were miracles. We saw a whole lot of babies go home to happy families pretty fast, even a baby on last ditch ECMO got better in what they called record time. We saw the NICU and progressive care units clear out within a couple days. Jonathan chose to take his time... We learned to appreciate the fact that God works in the small things as well as the big things.
Be blessed and love those around you.






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